Thursday, April 24, 2008

Autism statistics and tips

Autism Awareness Month:
Facts and Tips for Working with Students on the Autism Spectrum
In February 2007, the Centers for Disease Control issued a report which looked at a sample of 8 year olds, and concluded that the prevalence of autism had risen to 1 in 150 in American children and almost 1 in 94 among boys.
According to Indiana’s Child Count data reported by the Indiana Division of Exceptional Learners, Department of Education, the incidence of autism in Indiana for public school students is 1 in 128.
There is no single known cause for autism, but current research points to a genetic predisposition with potential triggers, including environmental factors.
Autism is referred to as a spectrum disorder to signify differences among a group of people who share a common diagnosis.
Currently, the Autism Society of America estimates that the lifetime cost of caring for a child with autism ranges from $3.4 million to $5 million.
The ASA also reports that the United States is facing almost $90 billion annually in costs for autism (this includes research, insurance costs and non-covered expenses, Medicaid Wavier for autism, educational spending, housing, transportation, employment, in addition to related therapeutic services).
Autism is treatable. Studies show that early diagnosis and intervention lead to significantly improved outcomes.
(Source: Autism Society of America. For more information, visit their website at
Tips: (Courtesy of Indiana’s Autism Leadership Network)
Approach students quietly from the side to avoid startling them. Their peripheral vision may be better and it gives them time to process information that tells them you are coming toward them. Once they are startled, it can be difficult for them to calm themselves.
Give the child space. Don’t hover behind.
Use non-verbal communication (e.g., gestures) when you can. For example, point to the location where you wish the child to be, put your finger to your lips to remind them to stop talking, or give a thumbs up when s/he is doing well.
Use literal, succinct and direct instructions. “First, put your coat in the closet, and then come to class.” Avoid idiomatic phrases or sarcasm that the student may not understand.
Use a calm even tone of voice. Excited adults yield excited students. Practice your poker face.
Visual supports are beneficial even after the child no longer seems to “need” them. Do not discontinue their use without a case conference discussion. In times of stress, these visual supports may be a great support.
Use a non-threatening stance: arms at your side or gently folded, and shoulders relaxed.
Remember not to take behaviors personally, even when the child has a perfect knack for targeting your most vulnerable attribute.
Children on the spectrum often have poor social skills. It is part of the diagnosis. Insert naturally occurring lessons into the day as they arise. For example, prior to the event, coach a child to say happy birthday to a peer, raise their hand to answer a question, cover their mouth when they sneeze, say no thank-you to non-preferred treats, etc.
Give the student ample time to respond BEFORE you repeat instructions.
Structure is your best friend. When there is down time, help students develop a repertoire of things they can do. For example, in line they can recite a poem in their head, count, read a book, make a list, etc. If there are too many choices given, narrow it to two or three and have the child choose.
If there is a given schedule, follow it. Prepare for any upcoming variations.
Information processing and sensory issues are more difficult when the child is stressed.
Know the signs of anxiety or stress for your students: pacing, hand-wringing, cussing, flushed face, laughing, etc. Know what causes anxiety or stress for each student. Adjust your language and demands when anxiety is heightened.
Spend time with a student before making programming judgments. Listen to and observe the student with input from family members, teachers/therapists or other involved staff before commenting.
Educate students using their knowledge, interests, and fixations. Build lessons around these special interest topics so that others see them as experts in something.
Stay in close contact with family members and physicians about what is working and what is not, especially when students are on medications.
Build in many small breaks, even in secondary school, for relaxation. Identify a safe area or safe person for the student to access when they are stressed.
Help find a social group, a club or some sort of organization that can connect them to peer mentors that are positive.
Pre-teach new concepts so they can re-hear them in the general education classroom. This allows them to contribute to the classroom discussion and promotes their success when topics have been rehearsed.
When you are feeling overwhelmed by a situation, surround yourself with a team of people with whom you can brainstorm. Using the resources and wisdom of all, helps us to be more creative and problem-solve more effectively.
The ultimate goal for any student is the ability to be independent and to have a successful adult life. No matter what the age of the student, teaching specific procedures and skills and then fading support, is essential for this to happen.
And finally, enjoy working with these students. They have many gifts and talents. Building a strong and positive rapport may be your most effective tool.
Special thanks to Roma Osterloo, Eilleen Kalman, Edi Powell and Olivia Schueler from Indiana’s Autism Leadership Network. Organized by Dr. Cathy Pratt, Director, Indiana Resource Center for Autism, Indiana Institute on Disability and Community. Visit our website at

Sunday, April 13, 2008

Score 1 mommy

We saw Dr. Taimanglo Friday afternoon on our way to the PIC.  We went over her diagnosis and the rough draft of her write up.  I was right and she has officially diagnosed Elijah with Aspergers Syndrome, a high functioning form of Autism.  So we'll soon have her finalized write up to bring to the school, which will probably mean some testing on their end and some more meetings.  I don't expect to see much in the way of services this year since it's already April, but everything should be in place for the start of school next year.  Next year he'll be in 3rd grade and that's where I really expect him to start having more problems, since 3rd graders are expected to be more self sufficient and able to work on their own.

Dave and I sat the kids down yesterday to explain things to them.  I'm not sure how much they all understood.  Caitlynn was very upset and worried about her brother.  We talked and I explained that he is still the same brother, we just have a name for the quirky things he does.  I'm sure there will be a bunch of questions in the near future as they process this all.

Spring Break

What a great week.  We did a whole lot of nothing.  We did spend and afternoon at the beach with the Fischer's which we really enjoyed.  Normally when we go to the beach the kids are done after about 2 hours.  When we went this week we spent 6 hours there, so that tells you how much fun they were having.  We spent the weekend at PIC and had a blast.  Elijah, he who seldom sleeps past 6:30am, had to be woken up at 8:30 this morning, and he still complained he was tired!  We went and saw the dinner show there for the first time, and it was great, I think Caitlynn enjoyed it the most.  I took a ton of pictures, hopefully some of them are good.  We'll see when I upload them from my camera tomorrow.  

Tomorrow is back to the real world of waking up early, which I'm not looking forward to :(  But I am looking forward to a nice nap tomorrow afternoon while the kids are at school!