Friday, May 30, 2008

It's official

We are definitely going to New Hampshire. Now the only question is when. Dates keep moving around. We may actually have to go to San Diego first for a while ant then onto New Hampshire. Of course we want to go straight to NH, but it's not up to us, it's in the Navy's hands. I really don't care either way anymore, I just want to know when we're moving so I can start planning.

Wednesday, May 14, 2008

Angry Elijah

I'm not sure what's going on lately but Elijah has been easily angered lately. Now don't misunderstand me, this is NOTHING like when he was taking the Concerta. Maybe a better word for it is frustrated not angry. Things have been really up in the air for him lately. He's being pulled out of class all the time for testing so that the school can determine what services he needs and we can get his IEP done. This is a good thing and needs to be done, but it's a disruption to his schedule, which is a major stressor for him. On top of this, he missed 4 days of school because he was sick, and Dave's away right now, so all in all he's just having an awful time. He raises his voice to me when I try to get him to stay on task, becomes more repetitive in his behaviors and generally has even less of an ability to focus than normal. I'm hoping that this really is due to stress and not a new behavior because one of the best things about Elijah is his sweet personality.

Happy almost Birthday Caitlynn

I can't believe my baby will be 10 in a week, how crazy is that? We had Caitlynn's birthday party this past weekend for a few reasons. Dave has basically missed almost all of Caitlynn's Birthdays but 3 because of deployment, so we scheduled her party early so he could be here and it still didn't work, they changed the day he left and he still missed it. Another reason is that two of Caitlynn's friends are moving this Saturday and she absolutely wanted them to be at her party. Thank goodness that one at least worked out, well almost, poor Kaci was sick and had to leave early.

We gave Caitlynn her gift, a Nintendo DS, before Dave left. Normally we'd wait until her real birthday to give her it, but a friend of ours bought her a game for it, so we had to give it to her before the party. I'm not sure who's more addicted to the silly thing, Caitlynn, Elijah or me. I definitely see a few more of these things finding their way into our home soon.

The party was at the bowling alley and it was very nice. I was worried because I was really sick that day, and was afraid it was going to turn into a total disaster. I forgot how easy 4th grade girls can be when they want to. I was basically just there to pay. They did everything else and it was great. This is the first party Caitlynn's had away from the house in 3 years and it was great. Her last 3 parties have been sleepovers which of course demand a LOT more from me, so this was totally low key and perfect since I was sick.

Blackout from hell

Ok, so anyone who's live in Guam knows we have power outages ALL the time, but this last one tops them all! The power went off at 10pm on Sunday and it didn't come back on until almost 11pm Monday. Yup 25 hours with no power. The best part? It only affected about 30 houses. So of course we lost all the food in our fridges and freezers. The one good thing about everyone being sick lately is that I hadn't had a chance to go grocery shopping and we only had about 1/2 as much stuff as usual. It still was enough to fill 3 1/2 trash bags though. Poor Caitlynn had to come grocery shopping with me today since she was home sick from school, she felt so crappy, but we literally had no food in the fridge. The biggest kicker, when I called for an update after the kids went to sleep they told me the Navy would pay for us to stay the night in a hotel. Like I was going to wake them back up, pack in the dark and drag them to a hotel, oh well.

Ick!

The kids and I have been battling this terrible virus for what seems like forever now. Elijah and Hannah were each able to go to school one day last week. The rest they spent at home. They ran fevers for 6 days, which baffled the doctor. The weirdest thing was on the last day they got leg pains so bad they could barely walk. I thought it was because of lack of food, since Elijah barely ate anything all week, but Hannah ate pretty well and still got the cramps. This was a new one for me, I've never seen leg pain with a virus.

Poor Caitlynn woke up sick this morning. She came down stairs and told me her head hurt in a way it never had before and that it felt like she was shaking her head all around, or wobbly as she put it. Sure enough she had a fever and a one way ticket to a day off from school. I feel bad for her though, we absolutely HAD to go grocery shopping today because of the power outage this weekend, which I'll write about in my next post.

Thursday, April 24, 2008

Autism statistics and tips

Autism Awareness Month:
Facts and Tips for Working with Students on the Autism Spectrum
Facts:
In February 2007, the Centers for Disease Control issued a report which looked at a sample of 8 year olds, and concluded that the prevalence of autism had risen to 1 in 150 in American children and almost 1 in 94 among boys.
According to Indiana’s Child Count data reported by the Indiana Division of Exceptional Learners, Department of Education, the incidence of autism in Indiana for public school students is 1 in 128.
There is no single known cause for autism, but current research points to a genetic predisposition with potential triggers, including environmental factors.
Autism is referred to as a spectrum disorder to signify differences among a group of people who share a common diagnosis.
Currently, the Autism Society of America estimates that the lifetime cost of caring for a child with autism ranges from $3.4 million to $5 million.
The ASA also reports that the United States is facing almost $90 billion annually in costs for autism (this includes research, insurance costs and non-covered expenses, Medicaid Wavier for autism, educational spending, housing, transportation, employment, in addition to related therapeutic services).
Autism is treatable. Studies show that early diagnosis and intervention lead to significantly improved outcomes.
(Source: Autism Society of America. For more information, visit their website at www.autism-society.org.)
Tips: (Courtesy of Indiana’s Autism Leadership Network)
Approach students quietly from the side to avoid startling them. Their peripheral vision may be better and it gives them time to process information that tells them you are coming toward them. Once they are startled, it can be difficult for them to calm themselves.
Give the child space. Don’t hover behind.
Use non-verbal communication (e.g., gestures) when you can. For example, point to the location where you wish the child to be, put your finger to your lips to remind them to stop talking, or give a thumbs up when s/he is doing well.
Use literal, succinct and direct instructions. “First, put your coat in the closet, and then come to class.” Avoid idiomatic phrases or sarcasm that the student may not understand.
Use a calm even tone of voice. Excited adults yield excited students. Practice your poker face.
Visual supports are beneficial even after the child no longer seems to “need” them. Do not discontinue their use without a case conference discussion. In times of stress, these visual supports may be a great support.
Use a non-threatening stance: arms at your side or gently folded, and shoulders relaxed.
Remember not to take behaviors personally, even when the child has a perfect knack for targeting your most vulnerable attribute.
Children on the spectrum often have poor social skills. It is part of the diagnosis. Insert naturally occurring lessons into the day as they arise. For example, prior to the event, coach a child to say happy birthday to a peer, raise their hand to answer a question, cover their mouth when they sneeze, say no thank-you to non-preferred treats, etc.
Give the student ample time to respond BEFORE you repeat instructions.
Structure is your best friend. When there is down time, help students develop a repertoire of things they can do. For example, in line they can recite a poem in their head, count, read a book, make a list, etc. If there are too many choices given, narrow it to two or three and have the child choose.
If there is a given schedule, follow it. Prepare for any upcoming variations.
Information processing and sensory issues are more difficult when the child is stressed.
Know the signs of anxiety or stress for your students: pacing, hand-wringing, cussing, flushed face, laughing, etc. Know what causes anxiety or stress for each student. Adjust your language and demands when anxiety is heightened.
Spend time with a student before making programming judgments. Listen to and observe the student with input from family members, teachers/therapists or other involved staff before commenting.
Educate students using their knowledge, interests, and fixations. Build lessons around these special interest topics so that others see them as experts in something.
Stay in close contact with family members and physicians about what is working and what is not, especially when students are on medications.
Build in many small breaks, even in secondary school, for relaxation. Identify a safe area or safe person for the student to access when they are stressed.
Help find a social group, a club or some sort of organization that can connect them to peer mentors that are positive.
Pre-teach new concepts so they can re-hear them in the general education classroom. This allows them to contribute to the classroom discussion and promotes their success when topics have been rehearsed.
When you are feeling overwhelmed by a situation, surround yourself with a team of people with whom you can brainstorm. Using the resources and wisdom of all, helps us to be more creative and problem-solve more effectively.
The ultimate goal for any student is the ability to be independent and to have a successful adult life. No matter what the age of the student, teaching specific procedures and skills and then fading support, is essential for this to happen.
And finally, enjoy working with these students. They have many gifts and talents. Building a strong and positive rapport may be your most effective tool.
Special thanks to Roma Osterloo, Eilleen Kalman, Edi Powell and Olivia Schueler from Indiana’s Autism Leadership Network. Organized by Dr. Cathy Pratt, Director, Indiana Resource Center for Autism, Indiana Institute on Disability and Community. Visit our website at www.iidc.indiana.edu/irca.

Sunday, April 13, 2008

Score 1 mommy

We saw Dr. Taimanglo Friday afternoon on our way to the PIC.  We went over her diagnosis and the rough draft of her write up.  I was right and she has officially diagnosed Elijah with Aspergers Syndrome, a high functioning form of Autism.  So we'll soon have her finalized write up to bring to the school, which will probably mean some testing on their end and some more meetings.  I don't expect to see much in the way of services this year since it's already April, but everything should be in place for the start of school next year.  Next year he'll be in 3rd grade and that's where I really expect him to start having more problems, since 3rd graders are expected to be more self sufficient and able to work on their own.

Dave and I sat the kids down yesterday to explain things to them.  I'm not sure how much they all understood.  Caitlynn was very upset and worried about her brother.  We talked and I explained that he is still the same brother, we just have a name for the quirky things he does.  I'm sure there will be a bunch of questions in the near future as they process this all.

Spring Break

What a great week.  We did a whole lot of nothing.  We did spend and afternoon at the beach with the Fischer's which we really enjoyed.  Normally when we go to the beach the kids are done after about 2 hours.  When we went this week we spent 6 hours there, so that tells you how much fun they were having.  We spent the weekend at PIC and had a blast.  Elijah, he who seldom sleeps past 6:30am, had to be woken up at 8:30 this morning, and he still complained he was tired!  We went and saw the dinner show there for the first time, and it was great, I think Caitlynn enjoyed it the most.  I took a ton of pictures, hopefully some of them are good.  We'll see when I upload them from my camera tomorrow.  

Tomorrow is back to the real world of waking up early, which I'm not looking forward to :(  But I am looking forward to a nice nap tomorrow afternoon while the kids are at school!

Tuesday, March 18, 2008

Great weekend

I can't believe it's all ready Tuesday evening. Friday we went to dinner with the Southards and then to the movies to watch Horton Hears A Who. The kids absolutely loved it! And considering that we had 7 kids in all they were all very well behaved. I think my favorite part of the whole movie was the end when they started singing. I was laughing hysterically because the first thought that popped into my mind was Dave and the kids and I playing the American Idol game and singing. We got home at about 8:30 and had their 3 oldest girls spend the night. You know that smell when you walk past a nail salon? That was my living room, you figure 5 girls doing each other's fingernails and toenails, the smell got pretty bad.

Saturday Dave taught diving all day and got home around 4pm. The kids and I did some chores and just hung out the rest of the day. After Dave came home and showered we headed out to the Fischer's house for a get together. Elijah was in all his glory because they had a bounce house, where he literally spent the whole evening, except when we made him come out for dinner. The girls liked jumping a lot too, but they also enjoyed running around the yard with the other kids.

Sunday morning we left the house at 8:30am for church. We stayed after church for a fellowship meal, which was a good by to Lisa's son who is leaving for boot camp this week. After that we went straight to the Kites for Wishes at Asan beach, to benefit Make a Wish society. Elijah's cub scouts met there to make a newspaper kite to fulfill one of their electives. While we were there we saw a bunch of really neat kites, the kids each got to purchase a kite and they also jumped in the bounce houses. I don't know how they could want to bounce more after the night before but they literally begged me. I never realized but the kids had their first sno-cones that day, which they loved.

Monday was pretty uneventful. I watched Mim for Jennetta so she could go to physical therapy. Other than that I did some cleaning.

This morning I spent 2 hours getting my hair colored. I'm not 100% pleased with the final color, hopefully it'll calm down a bit after a few washings. Then we had Junior Girl Scouts this afternoon. Jennetta is teaching the girls about first aid so they can earn that badge. At next weeks meeting we will hand out the badges and patches they've earned since we had the investiture ceremony. Then tonight Kerrie and I scrapped, I finished a cute project that I'll upload when I get it photographed.

Not much going on tomorrow just grocery shopping during the day, then Hannah has Girl Scouts in the evening.

Wednesday, March 12, 2008

Cubscout Blue & Gold



More Photos



World Thinking Day



I did it!


I said I wanted to make a project this week and I did. Dave was teaching dive class last night so I parked myself in front of the tv and put this together.

More Questions....

Monday's doctor appt. went well. She had a ton more questions for us and needed us to fill out another survey. I dropped that off today and she thinks she's ready to do her write up. I'm figuring we'll hear something in the next 2 weeks or so.

Sunday, March 09, 2008

Me

I've let too much go lately. Between Girl Scouts, Dr. Appts. and School Meetings I haven't done anything I enjoy. It's been months since I've scrapped or taken photos just because. I want to get started on at least one project this week. I don't even have to complete it, just start. I so need the creative outlet, way too much stress lately.

Dr. Day Again

Tomorrow we'll find out the results of Elijah's testing. I really hope by some gift of God that the test was enough and she's ready for a diagnosis, and we don't have to do any more testing. Mostly for him, I just want him to start getting the help he needs.

Interesting Meeting

We had a very interesting meeting at the school on Tuesday concerning Elijah. It all started Friday after school when the Guidance counselor called and spoke to Dave, she said "It's time we sit down and see what we can do to help Elijah." Of course our immediate thought is NOW IT'S TIME? It wasn't time last year, or the year before when we asked for help and were told we were looking for a problem that didn't exist. We were so angry Friday, but we thought about it over the weekend and decided that we need to just bite our tongues. It isn't about us it's about Elijah and rehashing the past isn't going to help him, it'll just put us against them. For a little assurance I decided that we would record the meeting, since noone remembers last years meeting the same way Dave and I do. Of course I had to let them know my intentions and stopped in Monday morning to let them know and also smooth over the angry responses we had on Friday, I really wanted to set us up to succeed in this meeting.

Did I mention over the weekend we tried to buy a mini tape recorder? Uh, it you only need the tapes, no problem the Navy Exchange carries those, but no recorders. We ended up using the girls MP3 player with a desktop microphone attached. I was worried about the quality, since the only microphone I could find was a cheep $5.99 one, but it cam out very crisp.

So Dave and I go there on Tuesday, I was nervous about the outcome of this meeting. It was kind of like entering the twilight zone.It's amazing what a difference having a teacher on your side can make. Suddenly everyone was seeing everything that we've been saying for the last few years. The special ed teacher, who's Elijah's teacher has been getting ideas from this year, tells us that she's been watching Elijah since Kindergarten when she had an encounter with him during an evacuation drill. We even had the Principal in for the meeting. We were told more than once that we're doing the right thing, that we were our son's advocate, blah blah blah. It was a total 180 degrees from last year. Suddenly everyone in the room could see a diagnosis of Aspergers fitting him very well. Although they did have to cover themselves and say that because Elijah is so intelligent and can do his work, just not in the time they provideed or without redirection, that it's not a obvious as some children that he needs help. Of course I didn't bring up that that was why we brought it up the last two years in a row, whatever.

So basically here's waht it all came down to. We're supposed to let them know as soon as we have a diagnosis from the Dr. The Special Ed teacher made them concede to saying that no matter the diagnosis they were sure there was something they could do to help him. They gave me a copy of all kinds of things out of his record, lots of things that I hadn't seen or heard before.

Girl Scout Week

Girl Scout week is the week during which March 12th falls every year because that's when Juliette Gordon Low registered the first Girl Scout Troop in 1912. This year we are celebrating 96 years of Girl Scouting in the USA. We kicked it off this Saturday with a Girl Scout 5K, put together by one of the troops on island, around Paseo Loop at 6am. Nobody in my house was very happy to get up at 5am, but we did it. We didn't complete the entire 5k, but we did 4 of the 6 laps which was 2 miles, not bad for our first 5k.

Today is Girl Scout Sunday, so the Girls wore their uniforms to church this morning. They're the only Girl Scouts at our church so they enjoyed telling everyone why they had on their uniforms.

Wednesday, February 27, 2008

In medical news today....

Dr. Taimanglo did her testing with Elijah last week. I just brought the evaluation from his teacher to him and scheduled our next appointment for March 11th. So we'll find out then if there needs to be more testing or if she's ready for a diagnosis.

Drum Roll Please

Well, the LDO results are finally out and.......................................................................................................................................................................Dave was selected. I honestly didn't know what to expect, he was sure he wouldn't get selected his first time, but he was very wrong. Yeah!!!! Well, I'm glad we already had plans for the family to go out for dinner, now we have something to celebrate. I know the next big question, how does that effect our orders to NY, honestly I don't know yet, and probably won't for a couple weeks at least. If I read the message right he will be commissioned November of this year, so we'll see what they want to do with him this last 9 months or so. Chances are we'll probably end up staying here :( I was getting so excited to come home and see everyone, but this is really great too!